Why a Neurodivergence Day? Mind and Body – March 11th

Did you know Neurodivergence is having a mind and body that is different from most of the population in the way people think, learn and process information but also  in physical body issues that can affect the whole body!

So, it is likely to be different in both mind and body to those who are not neurodivergent.

The most exciting and pioneering developments have been in the last few years and with SEDSConnective, the first neurodivergent symptomatic hypermobility charity leading this advocacy not only in Autism but also ADHD, Dyspraxia and TS  and probably more like dyslexia, dycalculia and dysgraphia along with physical pain and dizziness.  A researcher and team at BSMS, Dr Eccles, who is also our Patron, completed more research suggesting that neurodivergent people are more than double  to have joint hypermobility and experience much more pain, dizziness and fatigue than most people.  This is likely due to differences in our connective tissues, like collagen.  We have, as members of SEDSConnective, known this along with so many of our members but have simply not been believed so far.  Can you imagine any other diagnosed conditions where you are not believed?

For education this is also a big issue.  Attendance in schools has been deteriorating particularly for neurodivergent students.   My story is that I left school early, thought dim plus a hypochondriac so left with hardly any qualifications.  Much later on I self studied whilst looking after my ill and neurodivergent children. I realised that so many issues we were facing now were ones I had faced during my lifetime yet,  been dismissed.   As I gained expertise in teaching in all areas, I saw a pattern.  Why were so many students having trouble in school and being home educated, yet not always by choice?

There was not much interest, but I felt sure it was due to body health issues plus social mental and environmental issues. There was no name for it, but I looked further and later new research backed this up.  Physical health is different in neurodivergent people.  It affects us throughout the body from stomach pains so we can’t eat, to bloating so we don’t want to eat sometimes we are considered fussy eaters, bowel, bladder issues, allergy rashes, extreme tiredness, migraines, even anxiety and heart palpitations, dizziness, brain fog and most of all Pain.  Some anxiety may be a physical response due to gravity believe it or not!

For many years now I have presented and written professionally on how so many students were labelled with emotional based school avoidance (EBSA) but listed were nearly all the physical symptoms we now know exists with us! This was before Covid and Post Covid, it was very obvious Long Covid symptoms were very familiar to us.    We were not believed or maybe due to autism or ADHD diagnoses it was assumed only due to social, emotional, environmental or mental causes and nothing to do with the physiology. Yet the head and body are joined up?

We now know not being believed to be ill or injured without evidence of a previous accident or positive test can cause trauma.  We know we tend to MASK pain.   For this reason, we are calling for neurodivergence health to be recognised and not neglected or hidden from policies, agendas, training in education, health, care, work /employment, or travel needs.

[wpdiscuz-feedback id=”31tvtv9uy6″ question=”Do you think this is important?” opened=”0″]The first even neurodivergence affirming acceptance day for mind and body will be on March 11th #NeurodivergenceDay #NAAD #ND[/wpdiscuz-feedback]

Press release here : https://pressreleases.responsesource.com/newsroom/SedsConnective

 

 

May is National Asthma and Allergy Awareness month

by Dr Deborah Lee, Dr Fox Online Pharmacy

Did you know the month of May is ‘National Asthma and Allergy Awareness’ month? As a junior doctor, I saw a child die of asthma and it’s something I have never forgotten. Asthma is a very serious medical condition. And yes – asthma is linked to hay fever.

 

Does the pollen count really get worse year on year?

Every year we say the pollen count is worse than ever? – Is it? Yes – it is. According to the Asthma and Allergy Foundation of America (AAFA), global warming is causing extreme weather – heat waves and droughts. Increasing ground ozone levels and higher levels of carbon dioxide, then result in further global warming. This vicious cycle means plants have a longer growing season – they produce pollen in large quantities, and for more days in the year.

Don’t underestimate the danger of pollen. One (2000) study from the Netherlands reported  a 5-10% increase in deaths on days when the pollen count was higher than average. These were deaths from heart attacks, pneumonia, chronic obstructive airways disease, emphysema, and bronchitis.

 

Pollen and hay fever – the link

Pollen is a major cause of allergic rhinitis – hay fever. Interestingly –  2020 was a good year for hay fever, probably because so many people spent much more time indoors!

Between 10-30% of the UK population suffer from hay fever, and 40% of children. Pollen comes from trees – oak, birch, sweet chestnut, and pine trees, and from grass, nettles, and weeds. The pollen count is usually appreciable from March/April, reaching a peak in June/July, and settling in September.

 

Hay fever, pollen, and asthma

80% of hay fever sufferers say hay fever triggers their asthma. In hay fever, the release of histamine causes many of the unpleasant hay fever symptoms, such as an itchy, runny nose and eyes, and sneezing. Histamine also plays a central role in the onset of an asthma attack.

 

How to prepare for the hay fever season

See your doctor in advance to discuss your hay fever.  Antihistamines, such as fexofenadine, help prevent the release of histamine. You need to take these regularly to get the best effect.  You may be given a steroid nasal spray, and/or eye drops. Ideally, you should start these medications 4-weeks before the hay fever season begins.

If you have asthma, make sure you continue using your preventer inhaler as directed, and carry the reliever inhaler with you at all times in case you need an extra puff. If you are needing to use your reliever inhaler more often, this is a sign of worsening asthma and you should see your GP. Your GP or practice nurse will check your inhaler technique.

Here are a few helpful tips –

  • Stay indoors if it’s dry and windy. Keep windows and doors closed. Don’t do any gardening!
  • Regularly hoover the house. Don’t’ smoke or allow smoking in your home, as cigarette smoke is very irritating for your airways.
  • Wash your bedding frequently with hot water.
  • Don’t drink orange juice or grapefruit juice if you are taking fexofenadine.
  • Avoid alcohol, as this contains histamine and can worsen your symptoms.

 

Will wearing a face mask help hay fever?

In one 2020 study, nurses who wore standard surgical face masks had lower rates of hay fever.

The masks were thought to effectively filter out the majority of allergens, including pollens, that precipitate hay fever. Masks need to be kept clean and free of pollen, so they should be handled and stored carefully, and washed regularly.

 

Final thoughts

Think ahead this month and get control of your hay fever. Your COVID mask may just come in handy too! Don’t let the pollen count spoil your summer.

 

For more information

Allergy UK – Hay Fever (Allergic Rhinitis) https://www.allergyuk.org/information-and-advice/conditions-and-symptoms/11-hay-fever-allergic-rhinitis